Executive Committee

Elizabeth Vroom, the Netherlands, Chair

Ed Snitselaar, The Netherlands, Treasurer,

Sally Hofmeister, Germany

Filippo Buccella, Italy

Pat Furlong, USA

Supervisory Board:

Deborah Robbins, Australia

Christine Dattola, France

Luc Pettavino, Monaco

Nick Catlin, UK

Legal constitution: UPPMD is a Stichting (foundation) under Dutch law. UPPMD has a charitable status

If you want to contact UPPMD or the boardmembers, please contact Mirjam Franken at the UPPMD office:

Mirjam Franken

Postbus 821

3900AV Veenendaal

The Netherlands 

Email:

Tel nr +31 164 230270

Chamber of Commerce nr UPPMD 30226334 

If you want to contact other parents, parent groups and other individualist and organisators fighting this disease please register at http://www.duchenne-community.com