Update First Asian Duchenne DMD Conference in Bangalore. 
 
 
 
Conference dates:
 
Saturday, February 28th, 2009 and Sunday, March 1st 2009.
 
 
 
Venue: St Johns Auditorium, St Johns National Academy of Health 
Sciences, Johnngar, Sarjapur Road, Bangalore, Karnataka, India
 
Convenors: UPPMD, HCG, NIMHANS 
 
 
Speakers:
 
Dr Annemieke Aartsma
 
             Sylvius Lab, Leiden University, Netherlands
 
             Research overview -  Exon skipping
 
Dr John Bach
 
             New Jersey, US
 
             Lung function - non invasive ventilation/cough assist
 
Prof Doug Biggar,
 
             Bloorview MacMillan, Toronto, Canada
 
             Use of steroids in DMD
 
Prof Dennis Duboc
 
             Cochin, Paris, France
 
             Cardiology – Cardio medication
 
Dr Madhuri Hedge
 
             Emory University, Atlanta, US
 
             Genetics and genetic testing
 
Dr Jos Hendriksen
 
             Kempenhaeghe, Netherlands
 
             Learning disorders and comorbidity/emotional coaching
 
Dr Nathalie Goemans
 
             KUL, Louvain, Belgium
 
             Care – Standards of care - ongoing clinical trials
 
Helen Posselt
 
             Brisbane, Australia
 
             Physiotherapy
 
Dr Ajaikumar,
 
             HCG Bangalore Institue of Oncology
 
Dr Nalini
 
             Dept of Neurology, NIMHANS
 
             Scenario of DMD in India: Challenges
 
Dr Anupam Gupta
 
             Dept of neurorehabilitation, Nimhans, Bangalore, India
 
             Neurorehabilitation in DMD: An Indian Experience
 
Dr Raghavendra
 
             Health Care Global, Bangalore
 
             Role of Yoga in management of DMD
 
 
 
Patient representatives speakers:
 
Patricia Furlong, President Parent Project Muscular Dystrophy, USA
 
Elizabeth Vroom, Chair United Parent Projects MD, The Netherlands
 
Hafiz Issadeen, President Duchenne Parent Project, Sri Lanka
 
 
 
Registration:
 
(Pre) Register as soon as possible at Esta dirección de correo electrónico está protegida contra los robots de spam, necesita tener Javascript activado para poder verla
 
Group bookings are encouraged.
 
 
 
Registration Fee:
 
For India: Registration fee for the conference is 400 Rs per person: 
Please send Demand Draft favouring "HCG Foundation, Bangalore" with 
filled in registration form to Dr Raghavendra Rao M, No 8, P Kalinga 
Rao Rd, Sampangiramnagar, Bangalore-560027, Ph-080-40206410, 9916488864.
 
For participants outside India: Registration fee for the conference is 
$8
 
 
 
Accommodation:
 
Accomodation facilities (max 50 rooms) Rs 550 for a single room per 
day and Rs 750 for a double room per day. Rooms available only on a 
first come first basis. Only for parents who attend the conference.
 
Booking for the rooms in advance at  Esta dirección de correo electrónico está protegida contra los robots de spam, necesita tener Javascript activado para poder verla
For more information and updates on this meeting, frequently look at:
www.duchenne-community.org
 
The worldwide organisation UPPMD is dedicated to finding a cure and 
viable treatments for DMD, to promoting good standards of care and to 
informing parents and clinicians around the globe. There is a 
compelling need to ensure that wherever they are in the world, the 
children suffering from this disease can benefit from a standard of 
care that is informed by the best practice of the best clinicians from 
all over the world. It is equally important that the information 
available to parents is contemporary and is based upon the latest 
research.