Why become a member of UPPMD?
If you are an existing national group of Duchenne Parents it is important to become a member of UPPMD. Important for you because you will find mentors who can help you to improve things in your own country, but also important for the Duchenne boys and men. The more countries are connected, the more members we have, the stronger our voice can be.
Leadership: Ideally a parent should chair the project. Where this is not possible, for want of someone to fulfil the role, a parent should have a significant strategic leadership role.
Business form: The organisation should have a not-for-profit legal constitution with a management committee that is accountable to its membership.