Membership criteria

Objectives of members Member organisations should have or develop a program for Duchenne and/or Becker Muscular Dystrophy (DMD/BMD). The organisation would have to positively promote research, optimal care, knowledge, and education.

Leadership Ideally a parent or affected person should chair the project. Where this is not possible, for want of someone to fulfil the role, a parent or affected person should have a significant strategic leadership role.

Business form The organisation should have a not-for-profit legal constitution with a management committee that is accountable to its membership.

Statement of activities Each participating organisation will produce an annual statement of its activities with the relevant financial information.

Members per country If there is already an organisation with membership in a country, other organisations are encouraged to become an UPPMD member as well. The more countries are connected, and the more members we have, the stronger our voice can be.

Membership fee
For organisations with an annual income less than €100.000, the annual UPPMD membership fee is 1% of their annual income of the previous year. For organisations with an income equal to or above €100.000, the membership fee is €1000. Organisations will need to submit their annual financial statements every year before July 1st (of the next year).

Membership termination Membership can be terminated by unanimous decision of the executive committee, if a member fails to uphold the above mentioned criteria and the reputation of UPPMD.